患者支持专员
Patient Support Specialist
PTC Therapeutics 是一家全球商业生物制药公司。过去25年，我们的团队始终致力于一个共同的目标：为患有罕见疾病的儿童和成人延长生命的美好时刻。
在 PTC，我们营造了一个包容的文化，让每个人都能感受到价值、尊重和赋能。我们欢迎来自不同背景的候选人加入我们的团队，培养强烈的归属感。
访问我们的网站，了解有关我们公司和文化的更多信息！
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职位描述摘要：
PTC 的患者支持专员通过专注于病例管理，为罕见疾病患者（例如苯丙酮尿症）提供支持，包括儿科患者及其照护者，以及参与 PTC Cares 的成年患者。该职位负责协调治疗启动，与销售、患者参与和病例管理员团队合作，处理患者层面的物流需求，促进长期治疗依从性，并协助生命阶段的过渡（例如儿童到青少年，过渡到成人护理）。
患者支持专员还作为 PKU 领域专家，为患者服务团队提供支持，以确保患者支持的一致性和高质量。该职位不提供医疗建议，而是专注于使用批准材料进行产品培训、依从性和物流责任。
患者成功联络员负责确保符合相关法规和合规要求以及公司标准操作规程（SOP）。
职位描述：
职责：
- 通过电话/视频和其他批准渠道，向患者和照护者教育疾病状况、药物安全、给药和储存方法。
- 与指定的病例管理员、患者参与和销售团队紧密合作，协调治疗启动和持续的患者支持，统一患者层面的物流需求，确保参与 PTC Cares 的患者获得无缝体验。
- 利用资源赋能患者并提高治疗依从性。
- 识别并解决依从性障碍（饮食疲劳、口味偏好、社会压力、学业/工作限制、获取挑战、心理社会因素）。
- 根据项目触发条件、风险、错过随访或患者报告的问题，提供主动跟进。
- 支持过渡里程碑（例如，增加青少年自主性，过渡到成人护理团队，影响饮食依从性的重大生活事件）。
查看英文原文
PTC Therapeutics is a global commercial biopharmaceutical company. For over 25 years our team has been deeply committed to a unified purpose: Extending life’s moments for children and adults living with a rare disease.
At PTC, we cultivate an inclusive culture where everyone feels valued, respected, and empowered. We welcome candidates from all backgrounds to join our team, fostering a strong sense of belonging.
Visit our website to learn more about our company and culture!
Site:
Job Description Summary:
The Patient Support Specialist at PTC supports rare disease patients (e.g., PKU) through focused case management for pediatric patients and their caregivers, as well as adult patients enrolled in PTC Cares. This role supports coordination of therapy initiation, managing patient-level logistical needs in collaboration with the Sales, Patient Engagement, and Case Manager teams, promoting long-term treatment adherence, and navigating life-stage transitions (e.g., childhood to adolescence, transition to adult care).
The Patient Support Specialist also serves as a PKU subject matter resource for the Patient Services team to promote consistent, high-quality patient support. This role does not provide medical advice but focuses on product training, adherence, and logistical responsibilities using approved materials.
The Patient Success Liaison supports adherence to relevant regulatory and compliance requirements and company Standard Operating Procedures (SOPs) as appropriate.
.Job Description:
Responsibilities:
- Educate patients and caregivers on disease state, medication safety, administration and storage via phone/video and other approved channels.
- Work hand-in-hand with Sales, Patient Engagement, and Case Manager teams with the assigned Case Manager, Patient Engagement and Sales to coordinate therapy initiation and ongoing patient support, align on patient-level logistical needs, and ensure a seamless experience for patients enrolled in PTC Cares.
- Utilizes resources to empower patients and improve treatment compliance.
- Identify and address adherence barriers (diet fatigue, taste preferences, social pressure, school/work constraints, access challenges, psychosocial factors).
- Provide proactive follow-up based on program triggers, risk, missed check-ins, or patient-reported concerns.
- Support transition milestones (e.g., increasing adolescent independence, transition to adult care teams, major life events that affect dietary adherence).
- Coordinate with caregivers and healthcare providers, as appropriate and permitted, to reinforce plans and continuity of care.
- Escalate urgent concerns, clinical red flags, or safety issues per program guidance and required reporting procedures.
- Act as the PKU resource for Patient Services staff—answer questions, support complex cases, and provide coaching on patient communication approaches.
- Contribute to the development and refinement of PKU-specific workflows, scripts, and patient education tools.
- Share themes and insights with leadership (e.g., common adherence barriers by age group) to improve services and patient experience.
- Document all patient interactions accurately and in a timely manner in approved systems.
- Maintain compliance with HIPAA/privacy requirements and PTC Cares program standards.
- Participate in quality improvement initiatives and support adherence/outcome tracking as defined by the program.
Qualifications:
- Bachelor’s Degree and 5+ years of clinical nutrition/nursing and/or patient counseling experience with demonstrated adherence/behavior change support skills. Active, Dietitian/Nursing license and/or Master’s degree preferred.
- Metabolic Dietician or Pediatric Dietician and/or nursing expertise with practical, real-world application across life stages.
- Ability to drive sustained adherence through individualized coaching and barrier resolution.
- High-quality documentation, organization, and follow-through.
- Collaborative, consultative approach—trusted resource to the Patient Services team.
- Experience with PKU and/or inherited metabolic disorders across pediatric and adult populations.
- Strong competency in patient education, motivational interviewing, and coaching (including video/telephone delivery).
- Strong interpersonal and communication skills to interact with patients, families, and HCPs.
- High proficiency in handling patient logistics and tracking therapy adherence.
- Analytical thinker with excellent problem-solving skills and the ability to adapt to changing priorities and deadlines.
- Excellent understanding of the pharmaceutical delivery process and the ability to work compliantly/appropriately within the industry.
- Excellent planning, organization, and time management skills, including the ability to support and prioritize multiple projects.
- Proficiency with Microsoft Office.
- Ability to work independently and collaboratively, as required, in a fast-paced, matrixed, team environment consisting of internal and external team members.
Special knowledge or skills and/or licenses or certificates preferred.
- Experience in rare disease patient services, hub services, specialty pharmacy, or patient support programs.
- Familiarity with EMR/CRM documentation and metric-driven patient outreach.
- Bilingual (as aligned with patient population needs).
Travel requirements: Up to 50%
Preferred candidate location: U.S. West Coast (Pacific Time Zone). Candidates in other locations will be considered; however, preference will be given to those based in the West Coast region.
Expected Base Salary Range:
$97,100 - $122,200. The base salary offered will be contingent on assessment of candidate education level, background, and experience relative to the requirements of the position they are being considered for, as well as review of internal equity.
In addition to base salary, PTC employees are also eligible for short- and long-term incentives. All eligible employees may also enroll in PTC’s medical, dental, vision, and retirement savings plans.
EEO Statement:
PTC Therapeutics is an equal opportunity employer. We welcome applications from all individuals, regardless of race, color, national origin, gender, age, physical characteristics, social origin, disability, religion, family status, pregnancy, sexual orientation, gender identity, gender expression, disability, veteran status or any unlawful criterion under applicable law. We are committed to treating all applicants fairly and avoiding discrimination.
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Originally posted on Himalayas