卟啉症新闻专栏作家
Porphyria News Columnist
职位描述：
Bionews 是一家数字新闻公司，致力于为罕见和慢性疾病患者及其照护者创建社区，现正在寻找卟啉症社区成员加入我们的自由撰稿人团队，担任卟啉症新闻的照护者专栏作者。
Bionews 专栏作者是患者或照护者，他们分享与罕见或慢性疾病共处的生活。他们以专栏形式撰写个人文章，用于传递信息、激励他人、表达同理心和提供建议。他们的读者包括患者、照护者、医疗团队和研究人员。专栏作者也会面向对如何改善社会对疾病/残疾群体的理解和治疗感兴趣的普通读者。
所有专栏文章都会由专业编辑以严谨的态度进行审阅，并与作者合作完善内容，帮助作者提升写作能力。这是一项合同制工作。
请注意，您必须是卟啉症社区成员——优先考虑患者，但照护者也可申请以获得考虑资格。
职责与义务
- 按照入职时约定的每月两次截止日期完成任务。
- 与您的主管和编辑高效沟通。
- 提交符合 Bionews 政策和流程的 400-800 字稿件。
- 除特殊情况外，稿件不应超过 45 分钟的编辑时间。
- 按时完成编辑要求的修改。
- 完成 Bionews 人力资源部门分配的培训。
所需经验
- 具备向受众写作的经验。
- 至少有三个月直接照顾卟啉症患者的经历。
- 照护者必须是直系亲属、监护人或配偶。
优选经验
- 具有专业编辑出版的经验。
- 具有撰写博客或专栏的经验。
- 参与过与卟啉症相关的支持小组、网络论坛或社区团体。
所需知识
- 了解卟啉症的基本原理。
优选知识
- 卟啉症社区的内容需求或兴趣点。
所需技能
- 快速且独立学习互联网技术的能力。
- 具有创造力，能够定期生成吸引目标受众的独特内容。
- 时间管理能力。
- 高级创意写作能力。
优选技能
- 使用 WordPress 进行内容创作的经验。
- 使用 Slack 通讯应用的经验。
所需能力
- 互联网访问和使用能力。
- 英语写作和阅读能力为母语或流利水平。
查看英文原文
Job Opening Details:
Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the porphyria community to join our freelance staff of caregiver columnists on Porphyria News.
A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities.
All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position.
Please note you MUST be a member of the porphyria community -- patient preferred, but caregivers may apply for consideration in order to apply for this position.
Responsibilities and Duties
- Fulfill 2x monthly deadlines as agreed upon on hire.
- Communicate efficiently with your managers and editors.
- Submit 400-800 word drafts that adhere to Bionews policies and procedures.
- Aside from exceptions, drafts should not take more than 45 minutes to edit.
- Fulfill revisions as requested by editors in a timely manner.
- Complete training assigned by Bionews HR.
Experience Required
- Prior experience with writing for an audience.
- At least three months’ direct experience with caring for someone with porphyria.
- Caregivers must be direct relatives, guardians, or spouses.
Experience Preferred
- Experience in being professionally edited for publication.
- Experienced in generating a blog or column.
- Participation in support groups, internet forums, or community groups relevant to porphyria.
Knowledge Required
· Fundamentals of how porphyria works.
Knowledge Preferred
· The content needs or wants of the porphyria community.
Skills Required
- A swift and independent learner of Internet technology.
- A creative mind capable of regularly generating unique content that appeals to target audiences.
- Time management.
- Advanced creative writing.
Skills Preferred
- Experience in using WordPress for content creation.
- Experience with the Slack communication app.
Abilities Required
- Internet access and use.
- Native or fluent English writing and reading abilities.
Who is Bionews?
Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information.
Bionews Vision
To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community.
Bionews Purpose
We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life.
Values: R.A.R.E.
- RESPONSIBILITY
- ADVOCACY
- RELATIONSHIPS
- EMPOWERMENT
Originally posted on Himalayas